Friday, February 02, 2007


This poem describes just how it felt learning about Madison's albinsim and sensory integration dysfunction:

" Welcome to Holland".
by Emily Pearl Kingsley.
A parent of a child with Cerebral Palsy.

I am often asked to describe the experience of raising a child with a disability, to try to help people who have not shared that unique experience to understand it, and to imagine how it would feel. It's like this.
When you are going to have a baby it's like planning a fabulous vacation trip to Italy.
You buy a bunch of guidebooks and make your wonderful plans.
The Colloseum, Michaelangelo's David, the Gondolas in Venice!!
You may learn some handy phrases in Italian. It's all very exciting.
After all the months of eager anticipation, the day finally arrives.
You pack your bags and off you go.
Several hours later, the plane lands.
The stewardess comes in and says " Welcome to Holland ".
" Holland !?" you say. " What do you mean, Holland .
I signed up for Italy. I'm supposed to be in Italy.
All my life I've dreamed of going to Italy ".
But there has been a change in the flight plan.
They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place full of pestilence, famine and disease.
It's just a different place.
So yo must go out and buy new guidebooks.
And you must learn a whole new language.
And you will meet a whole new group of people you would never have met otherwise.
It's just a different place.
It's slower paced than Italy, less flashy than Italy.
But after you've been there for a while and catch your breath,
you look around and you begin to notice that Holland has windmills;
Holland has tulips; Holland has Rembrandt's.
But everyone you know is busy coming and going from Italy,
and they're all bragging about the wonderful time they had there.
And for the rest of your life you will say,
" Yes, that's where I was supposed to go; that's what I had planned ".
The pain of that will never, ever go away, because the loss of that dream is a very significant loss.
But if you spend your life mourning the fact that you didn't get to Italy,
you may never be free to enjoy the very special, the very lovely things about Holland.

1 Lonely Comment:

Bonnie said...

That's really lovely and evocative.

I think Holland is just lovely. :)