Friday, October 14, 2005

And we're done.

The MRI is over. They had to put Maddy to sleep and do the MRI while we waited in the waiting room, but she woke up just fine. We're home. She ate just now and is napping, but she's been her usual self and we even got a few smiles out of her. So far no side effects from the anesthesia, but it's only been a little while. Grandma and Papa came and waited with us and helped watch Emma. Hopefully we'll know something today -- but maybe not until Monday. They say there's a good chance we'll get a call today though. It's nerve-wracking to know that we may wait all day today and not even get that call. Casey and I are hoping for the best and dreading the worst. The most awkward part is that we don't really know what the "worst" is. We weren't told what they were looking for specifically, other than a cause of her vision problems besides just albinism. I'm not familiar with what those kinds of things could be, but any time a brain abnormality is being investigated it has to make parents nervous.

I know I'm needed at home today, if we get a good call then that'll be great, but just in case they find something I know I need to be here to be with everybody.


Kristen said...

We are praying for the best.

Carol Carpenter said...

I once had a high school student who had this issue of involuntary back and forth eye movement. He was a good reader, drove a car just fine, and didn't need any corrective eyewear. I copied the following from NOAH:
"The lack of pigment in the eyes causes various vision problems:

Reduced visual acuity from 20/60 to 20/400 and sometimes as good as 20/25 in African-Americans, 

Nystagmus - involuntary back-and-forth movement of the eyes, 

Strabismus - crossed eyes or "lazy" eye, and 

Sensitivity to bright light and glare. "

Even if this turns out to be Nystagmus, I think there is plenty that can be done to help Maddy with her eyesight.

Love and Prayers,
Aunt Carol

Chris said...

Thanks for the information Aunt Carol. Unfortunately we're under the impression that they are looking for something more ominous that could cause the Nystagmus that Madison has. However, even if they do find something with the MRI I think we may be better off than if they don't. If they don't find anything we're stuck jsut waiting for the problem to go away and treating the symptoms and coping in the meantime. If they find something as a cause there may be something they can do about it. I'm still not sure which way I'd rather it be, but I'm prepared for both. Thanks for your research, and please let us know if you find anything else!

Carol Carpenter said...

If you need some cute diversion, just view this one:

Aunt Carol

Carol Carpenter said...

It is always better to know what we are facing. Truth does set us free....ultimately!
Aunt Carol

Aaron said...

I'm hoping and praying for the best. God has a plan for each of us!

Anonymous said...

It was a disappointment not to have been able to have results of the MRI. The weekend of waiting...and not easy. I've chosen for any wonderment that has any tendency to move toward worry to trigger a reminder that He's got the whole world in His hands, and that the ultimate plan is to bring us all closer to Him, according to His plan, not ours.
Easily said. But it did help to get it out there. And it also helps knowing lots of prayers are lifting you and Casey and Emma and Maddy up right now.
Hugs for all,
Dad aka Papa Joe!

Anonymous said...

One very important thing to be thankful for is that Maddy dealt successfully with the anesthesia! Yes! That was a wonderful outcome.